barriers to participation
Participants
185 participants shared ideas to break barriers
Key Insights
97.8% aware, 90.3% understood importance
Focus
Challenges faced by patients in clinical trials
Needs Identified
More patients (59.5%), more trials (54.6%), better funding (51.9%)
Ethics & Data Privacy in Clinical Research
Participants
116 patient advocates joined to learn about research ethics.
Key Insights
Only 16.5% knew ethics for vulnerable groups, 69.2% knew data governance.
Focus
Understanding Ethics Committees, data privacy, and patient rights.
Impact
+5.4% knowledge gain, 15.4% rise in ethics awareness, 11% rise in data privacy understanding.
Breaking Barriers to Clinical Trials
This workshop explored the key barriers that stop patients from participating in clinical trials, such as fear, safety concerns, and lack of awareness. It focused on empowering patient advocates to address these challenges, encourage more participation, and build stronger trust between patients, communities, and research teams. The workshop highlighted real insights, actionable solutions, and the positive role of Patient Advocacy Groups (PAGs) in bridging the gap.
Participants
185 participants shared insights to break barriers in clinical research
Key Insights
97.8% aware, 90.3% understood trial importance.
Focus
Understanding challenges patients face in clinical trials
Impact
PAGs helped enroll 14 patients in 6 months (88.6% agreed)
Strengthening Patient Networks
Participants
120 patient advocates from various regions joined
Key Insights
High interest in training programs, sharing success stories, and building trust.
Focus
Building strong networks and partnerships for patient advocacy
Impact
Created local advocacy groups and partnerships to reach more patients
Workshop Series Overview
This comprehensive workshop series provided essential knowledge and skills for patient advocates, covering clinical research fundamentals, ethical practices, regulatory frameworks, and patient-centric approaches to improve healthcare outcomes.
Workshop Series Overview
This comprehensive workshop series provided essential knowledge and skills for patient advocates, covering clinical research fundamentals, ethical practices, regulatory frameworks, and patient-centric approaches to improve healthcare outcomes.