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Request for Proposals (RFP)
COLLABORATE Grant Program:
Supporting Ageing Adults Living with Rare Diseases
• Assessment & Analysis: Improve and sustain care for ageing adults with rare diseases by gathering evidence to support advocacy for closing healthcare gaps and driving policy change. This can include programs that evaluate community outreach models. Application should include a thorough plan on how the evaluation data will be utilized to shape public policy.
• Education & Awareness: Supporting the development of a National Action Plan on Rare Diseases. Increase education and awareness programs for healthcare providers, patients and caregivers, including the distinction between ageing and illness. Development of resources and tools to support aging adults with rare diseases.
• Policy & Advocacy: Empower communities to advocate for better access to care through the pursuit of legislation or regulations that support ageing with RD in Patient Rights Policy frameworks, policy outreach/grassroots events, and strengthening of advocacy skill sets by connecting organizations.